I was diagnosed with End Stage Renal Disease in June of 2009 and began Hemodialysis. I am now experiencing a loss of smell and taste. The problem has now progressed to the point of me wanting to eat food, drink juice, etc. Tomorrow I will be meeting with my primary physician and the dietitian at my treatment center is having my blood tested for a zinc deficiency. I have been searching the Internet and reading up on this topic.
I would really appreciate receiving information from anyone who has experienced this problem. The only medications I take are Synthroid and Protonix along with Vitamins C and B Complex 100. I am also suppose to take one PhosLo tablet with my largest meal.
Welcome to the board!
I was on peritoneal dialysis before my transplant. I experienced loss of taste for sure. I don't have anything but an armchair quarterback's best guess but here it is.
First off, our kidneys affect our body in many ways. My guess is that our sense of smell and taste is affected by kidney function. I don't know but it makes sense.
The odd thing is that not everyone experiences this. In part, it may be because there are so many things about our body that change gradually with CKD and we don't notice as a result. I also think that our own body scent becomes stronger because the toxins not cleared by our kidneys or by dialysis come out through our pores. When I started dialysis, I felt better than before. however it was disappointed to have my wife tell me that I smelled better but I still smelled.
When I got my kidney and it started doing its thing, my sense of smell came back. Everything tasted good and I could smell everything.
I'm not sure about how zinc relates but it is worth checking out: http://ods.od.nih.gov/factsheets/Zinc-Consumer.asp#h6
Perhaps I didn't get some of the treatment I needed while on dialysis. But the optimal solution is to get a transplant and all the "smaller" issues will disappear. Nothing like a working kidney.
day 83 post transplant