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 1 
 on: Today at 08:51:45 AM 
Started by PrincessLeila - Last post by PrincessLeila
I'm wondering if you were checked for a urinary tract infection?

Refurb

I wasn't directly in ER but my serum white cell count was low which would indicate I'm free of infection. I have these urinary difficulties all the time, for a number of years now.

 2 
 on: Today at 08:34:15 AM 
Started by Valeska - Last post by obsidianom
Hi all,
Here is some more information, my vascular surgeon says that I'm getting some narrowing in my fistula and. I have a low tolerance for pain so he doesn't want to do the normal balloon procedure which is usually done in the office. Instead he's going to do a surgery in the hospital called patching.
  Thanks so much for all the information,
                      God bless,
                            Valeska
I beleive what he is planning is to take a piece of vein from your arm and open up the fistula lengthwise and use the vein to patch the opening . This adds width to the fistula . I had it done for my wife and it worked very well. Her fistula is very large now. 

 3 
 on: Today at 08:29:36 AM 
Started by Valeska - Last post by Valeska
Hi all,
Here is some more information, my vascular surgeon says that I'm getting some narrowing in my fistula and. I have a low tolerance for pain so he doesn't want to do the normal balloon procedure which is usually done in the office. Instead he's going to do a surgery in the hospital called patching.
  Thanks so much for all the information,
                      God bless,
                            Valeska

 4 
 on: Today at 08:27:30 AM 
Started by PrincessLeila - Last post by refurb
I'm wondering if you were checked for a urinary tract infection?

Refurb

 5 
 on: Today at 02:55:21 AM 
Started by PrincessLeila - Last post by PrincessLeila
PL, welcome back to the land of the living. So glad to hear you were back in the ER to be taken care of.

In the United States, physicians have never provided that kind of care in office. It is always done in hospital. I know the first time you went you said you left because of the wait. We also wait here in the United States, long hours in the ER, pending priority.

So glad to hear you are returning to the norm. Keep up with the fluids.

With transplant I am required to drink 2 liters or more of water a day. Sometimes I really have to push the fluid. It's those moments I wish I had an IV of fluid to give myself. LOL...

Dehydration is a major issue.

So happy things came together.

Getlife

Getlife, 2 litres a day of just drinking water is A LOT to take in. On my day of recovery post ER when I had to drink a lot of fluids, I drank 2 litres of water plus half a litre of electrolyte/lemonade from pharmacy. THAT was a lot of drinking!

Because of some mysterious unknown reason I have moderate VOIDING SYNDROME (dx 2012), which means that I don't always pass urine as easily in one go like others do. I often have to go twice after a short interval to fully empty the bladder. Now that I am on a 'water drinking binge', my bladder perpetually feels full. When I go to release, very little comes out and the feeling of fullness persists. When I go for pelvic ultrasounds that require a full bladder - it can take me hours to be able to fully release my strained bladder!

Does anyone know whether this is related to kidney issues or diabetic neuropathy issues? All previous ultrasounds ruled out any hydronephrosis issues & the bladder investigation I had also ruled out any obstruction issues in the urinary tract ... It must be a nerve problem I guess?


 6 
 on: Yesterday at 07:30:36 PM 
Started by sweetblood1974 - Last post by getlife
I didn't know that either! Interesting. Thanks for sharing.

 7 
 on: Yesterday at 07:24:54 PM 
Started by PrincessLeila - Last post by getlife
PL, welcome back to the land of the living. So glad to hear you were back in the ER to be taken care of.

In the United States, physicians have never provided that kind of care in office. It is always done in hospital. I know the first time you went you said you left because of the wait. We also wait here in the United States, long hours in the ER, pending priority.

So glad to hear you are returning to the norm. Keep up with the fluids.

With transplant I am required to drink 2 liters or more of water a day. Sometimes I really have to push the fluid. It's those moments I wish I had an IV of fluid to give myself. LOL...

Dehydration is a major issue.

So happy things came together.

Getlife

 8 
 on: Yesterday at 11:30:30 AM 
Started by Valeska - Last post by Scuba Girl
You might want to listen to these Kidney Talk programs on the Renal Support Network Website

How to ask for a Kidney
http://www.rsnhope.org/kidneytalk-podcast/show-index/how-do-you-ask-for-a-kidney/

Finding a Kidney on Craig's List
http://www.rsnhope.org/kidneytalk-podcast/show-index/finding-a-kidney-on-craigslist/

Going viral for a Kidney
http://www.rsnhope.org/kidneytalk-podcast/show-index/going-viral-for-a-kidney/


 9 
 on: Yesterday at 11:04:19 AM 
Started by see61 - Last post by Scuba Girl
I worked full time until the day before my transplant, living donor, and went back to work 3 months later full time. I don't have any statistic's but most of the transplant patients I know work and some dialysis patients.  I even know a man who goes to dialysis at 4AM and when he gets off dialysis, he drives a truck and delivers beer all day. If you read the book Chronically Happy, by Lori Hartwell you will see that she worked continually and founded Renal Support Network.  It is different for everyone, but I think that working for me was good way to not define myself as a patient. 

 10 
 on: Yesterday at 08:18:42 AM 
Started by PrincessLeila - Last post by obsidianom
It is usually done in the ER outpatient  here.

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