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September 19, 2014, 08:53:18 PM PDT *
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 on: Today at 05:00:07 PM 
Started by Valeska - Last post by getlife
LOL...out of the norm for him.  He was into it..

Laughter is good stuff.


 on: Today at 03:45:27 PM 
Started by Valeska - Last post by BJ275
Humor is great!

 on: Today at 11:18:49 AM 
Started by sweetblood1974 - Last post by sweetblood1974
Isn't that the truth? !!

We have to be our own advocates indeed.

Will keep you posted.

 on: Today at 07:41:14 AM 
Started by Valeska - Last post by Valeska
HI All,
Sorry I havn't written much lately but, here is a sort of funny stroy that happened at my dialysis center in Torrington Ct. Most of the time when I'm on dialysis the nurses put me next to a man named Brad Fritzpatrick. He's a really nice man who's a retired lawyer. A lot of the time he likes to chat with me or whatever nurses are around but, NOT a few weeks ago, Not while watching the U.S. Open. So it had been kind of quiet through out the day but then all of a sudden Brad exclaimed "*&#%!" and every nurse within earshot came racing over to his side and I heard things like "Brad, Brad, are you cramping? Brad are you dizzy, is your pressure dropping?" Brad responded with "No, No, I'm fine..Djokodic just double faulted!" In other words he was rooting for Djokodic. The whole situation made me laugh and I hope it makes someone else laugh too. Well, I'll write some more later.. May God bless all of you,

 on: Today at 07:05:26 AM 
Started by PrincessLeila - Last post by PrincessLeila
Also, some extra enlightenment today! My periodic pronounced falls in my Haemoglobin levels is NOT related to renal function - it is due to heavy menstrual bleeding! My new Neph has said that treatment with Aranesp/EPO injections is not suitable for iron-depleting blood loss issues!!! He asked me to focus on iron supplementation instead. Aranesp poses health risks anyway - more so if it's not the appropriate type of treatment.

It sure is better to have 2 heads instead of one! I will supplement with Iron & will see my new Neph again in 2 weeks!! Boy I sure hope this can be fixed with just iron supplementation instead of EPO injections! Time will tell of course.

 on: Today at 06:56:52 AM 
Started by PrincessLeila - Last post by PrincessLeila
Yes, with Subway for example, a foot long bread roll with just cheddar cheese, salad & a bit of mayo is about 1,000 - 1,200mg. So when I indulge in this fast food, I just know that my other meals that day needs to be very low sodium. The same with any restaurant meals like pasta dishes.

It really does help if we didn't eat too much either!

 on: Today at 06:52:02 AM 
Started by newmem - Last post by BJ275
I didn't have much swelling, but tiredness, yes indeed!  It is a common struggle.  I'll try to think of what I did to cope.  The only thing that comes to mind now is that I didn't feel guilty for napping when I needed to - - or fell asleep unintentionally.

 on: Today at 06:48:56 AM 
Started by PrincessLeila - Last post by BJ275
He thinks I am in fact stable and not progressing rapidly.


 on: Today at 06:46:57 AM 
Started by PrincessLeila - Last post by BJ275
I'm glad your friend is home - it's so hard to be sick away from home.
Sorry he got mugged!!!

I try to stay below 1500 myself which is harder when you eat out, yes. I currently am using myfitnesspal to track my foods, and it does list sodium for all of them.  Of course, you don't know until you've eaten it, it was way too much, but you gain awareness of what not to eat.  It helps me to be able to see it. 

 on: Today at 06:46:16 AM 
Started by PrincessLeila - Last post by PrincessLeila
I saw my new Neph today and he told me that though there was a bit of a dip in eGFR in my last lab results, it is not at all what he'd consider to be a sure sign of progression. He told me that most people's serum creatinine levels can go up and down, even in non-CKD people. He thinks I am in fact stable and not progressing rapidly.

It would seem that our bodies have certain bands or parameters of values in Sr Creatinine that is within the norm for that stage that we're in.

Yay, I now have 2 Nephs! This will hopefully help me feel more on top of things in the future and enable me to have more access to assistance if anything should go wrong! (eg 2 different hospitals & renal teams).

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