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 1 
 on: Today at 01:39:33 AM 
Started by PrincessLeila - Last post by PrincessLeila
Wow, that was a depressing read!

I was also disappointed to see the "market" information in the one article. I suppose one has to make money to get a medicine developed but it still bothers me.


Tim & BJ, you know, it instantly depressed me too! But I suppressed it. I've realised how much I do that as an automatic defense mechanism when wading through medical information, esp any new therapies that are being marketed for approval.

But I have to admit, this material from the company Mesoblast is particularly depressing. I'm not even sure whether it may be strictly speaking correct. Stats are manipulated to suit particular agendas all the time. I generally have not read that diabetics fare badly compared to other kidney patients. Considering how many kidney dialysis/transplant patient there are due to diabetes - surely many of the people doing well with treatment would also be a lot of diabetics as well!?

 2 
 on: Yesterday at 09:45:00 PM 
Started by Kassmo19 - Last post by BJ275
A great cookbook called "Cooking for David" has good recipes for pre-dialysis, each kind of dialysis & post- transplant.
I know people have said DaVita.com has good recipes too.
There is a book - look for The "Calorie King", can't remember his name, but it has good info for restaurants, etc.. Not always phosphorus, but it was a real eye opener for me!!

The renal diet is tough but it really helped prolong my function until I had a transplant.  Do what you can to join him when you can.

Nice you are looking out for your Dad.  Support is really helpful. 

Sometimes, nurses can say things they'll listen to easier than family Smiley

 3 
 on: Yesterday at 09:33:58 PM 
Started by PrincessLeila - Last post by BJ275
Wow, that was a depressing read!

I was also disappointed to see the "market" information in the one article. I suppose one has to make money to get a medicine developed but it still bothers me.

There are newer drugs than Metformin.  Wonder how they stack up!



 4 
 on: Yesterday at 11:09:26 AM 
Started by Kassmo19 - Last post by Kassmo19
Greetings everyone!  My dad has kidney disease and his latest lab results caused us all to take a deeper look into his diet.  We are making changes and trying out best to help my dad follow the low sodium, phos., pot. and protein diet.  This is going to be a challenge and we need all of the help we can get.  My family is not unfamiliar with special diets as I have an insulin controlling diet (severely hypoglycemic) and my brother who has Autism has a gluten free and dairy free diet.  Please send me links or information on how best to approach this new change!

 5 
 on: Yesterday at 08:58:53 AM 
Started by PrincessLeila - Last post by TRB
I didn't mean to say any thing to put you over the edge Tim. Just looking for the positives. It sounds like you need to let your Neph know how you're feeling right now since the weekend. Please don't hesitate to let him know of anything you're experiencing. I wish I could do something to help you!

I was not anything you said. Just tired of the fight that seems to be wining all the time. Reading that stat just kicked me down again. Again, nothing you have done.

 6 
 on: Yesterday at 08:56:24 AM 
Started by PrincessLeila - Last post by PrincessLeila
I didn't mean to say any thing to put you over the edge Tim. Just looking for the positives. It sounds like you need to let your Neph know how you're feeling right now since the weekend. Please don't hesitate to let him know of anything you're experiencing. I wish I could do something to help you!

 7 
 on: Yesterday at 08:43:24 AM 
Started by Scuba Girl - Last post by Scuba Girl
Have any of you been watching NY Med, with Dr. Oz?  This past week there was a great story of a 24 year old son who gives a kidney to his Mom, prior to her having to start dialysis. I hope it helps show others the process of being a living donor and how rewarding the experience is for all involved.
The program shows the complete surgery of removing the kidney from the donor and then implanting, attaching and starting to make urine in the Mom.  You can see within days the donor is doing great and the Mom is a new woman.    

You can watch past episodes of MY Med on Hulu for free.  The transplant is episode 5

http://www.hulu.com/ny-med


 8 
 on: Yesterday at 08:36:39 AM 
Started by PrincessLeila - Last post by TRB
Tim, I thought of you when reading this. Honestly, there are many factors that would influence why some people do well & others don't such as the effectiveness of treatment, success of transplant & individual factors which can be varied. You're doing so well right now, better than what many may experience in stage 5, that I would just concentrate on that.

Remember, researchers do tend to paint a grimmer picture sometimes as a way to market the importance of their work. I've done so well with my retinopathy, but all one tends to read is how diabetics end up blind to varying degrees! If I truly believed treatment for my eyes was futile I would have already given up! But thank heavens treatment has succeeded & I'm held up as a success story at the eye clinic where I go. Many specialists at the start of this adventure gave me grim scenarios as predictions! We just don't know sometimes how well people will fare. We can only take each day as it comes & have faith to sustain us Smiley

I have not felt good all weekend. Having a hard time loosing the weight I need to. After my hike it took 3 days for my legs to recover. Not sure I do as well as many think I might be doing. Reading that comment just sent me over the edge again. Plus my hand feels off now after the fistula placement. Seem to have lost some felling in it.  I'm just tired of this and want the lord to give me a break.

 9 
 on: Yesterday at 08:16:24 AM 
Started by PrincessLeila - Last post by PrincessLeila
Tim, I thought of you when reading this. Honestly, there are many factors that would influence why some people do well & others don't such as the effectiveness of treatment, success of transplant & individual factors which can be varied. You're doing so well right now, better than what many may experience in stage 5, that I would just concentrate on that.

Remember, researchers do tend to paint a grimmer picture sometimes as a way to market the importance of their work. I've done so well with my retinopathy, but all one tends to read is how diabetics end up blind to varying degrees! If I truly believed treatment for my eyes was futile I would have already given up! But thank heavens treatment has succeeded & I'm held up as a success story at the eye clinic where I go. Many specialists at the start of this adventure gave me grim scenarios as predictions! We just don't know sometimes how well people will fare. We can only take each day as it comes & have faith to sustain us Smiley

 10 
 on: Yesterday at 07:36:24 AM 
Started by PrincessLeila - Last post by TRB
Great.

Ultimately this leads to end stage renal disease (ESRD) where there is no effective kidney function and renal replacement therapy (kidney transplantation or dialysis) is the only option. The prognosis for patients with diabetic kidney disease is grim. Despite advances in dialysis and kidney transplantation, the probability of five-year survival from time of ESRD diagnosis is less than 50%.3


I swear I'm about to just give up! Misery for 5 years does not sound all that great.

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