I'm new too.   

Welcome and WOW.  You've been through quite a bit at such a young age.  It sounds like you and your doctor have come up with a great plan.... ByeBye left kidney.  Sending you hugs and positive vibes.   

 

Hi, I'm new to the forum and sooooooooo glad Ive found a place where i am able to share and learn from others with CKD. 

On to the crazy stuff....

I MUST take 24 pills daily.  If I take the "as needed", that pushes the pills to nearly 30 daily.   I'm so sick and tired of swallowing pills.  . I'm curious to know how others manage their CKD.

(2) Calcitriol  0.25 mcg caps
(4) Potassium Chloride 10 meq tabs
(1) Lasix 40 mg
(6) Labetalol  300 mg tabs
(1) Lisinopril 40 mg tabs
(4) Prazosin HCL 5 mg caps
(1) Amlodipine 10 mg
(1) Vitamin D 2000 unit cap
(1) Lamictal 200 mg tab
(3) Wellbutrin ER 150mg tabs

As needed
(2) Ativan 1mg for Anxiety
(3) Oxycodone 30mg for back/bone pain

Dialysis bloodstream infections significantly reduced by following CDC guidelines

Have you ever had a dialysisblood stream infection?

http://www.nephrologynews.com/articles/109527-dialysis-bloodstream-infections-significantly-reduced-by-following-cdc-guidelines#.UZpUDPYMC3E.facebook

Estafadores engañan sobre el nuevo mercado de seguros médicos

Nadie puede inscribirse antes del 1º de octubre de 2013

http://gobiernousa.tumblr.com/post/50910734889/estafadores-enganan-sobre-el-nuevo-mercado-de-seguros

"Pentec Health Announces Limited Voluntary Recall of Certain Compounded Prescription Therapies for Renal Patients"

http://www.fda.gov/Safety/Recalls/ucm352861.htm?source=govdelivery#.UZZ1OHkayhY.facebook

If you think you may be affected, bring it to the attention of your health care team right away.

Cómo prepararse para los nuevos mercados de seguros médicos

http://www.usa.gov/gobiernousa/Articulos/Como-prepararse-nuevos-mercados-seguros-medicos.shtml

Hello, I'm new to this forum. I'm not new to CKD and urological problems. I'm a 21 year old male. I was first diagnosed with VUR (Vesicoureteral reflux) when I was a year old. I have had both my left and right ureters re-implanted several times since I was born, with the left being a reoccurring problem. My left ureter will not comply with the surgeries. I reflux on only the left side currently, and lat grade 5 (scale is 0-5). Having this reflux for 21 years has caused me to have many infections, obstructions, hydronephrosis, and has put me into CKD. My left kidney still functions at just over 20% (not a transplant recipient) and my right has picked up the slack. After having surgery 6 times to re-implant my left ureter without success, and after having several massive reconstruction surgeries. My surgeons and I have decided that its time to say goodbye to my left kidney.So I will be having it removed soon. They gave me about a 90% chance that I will feel better afterwords and not need a new kidney or dialysis. I'm currently running very high fevers (104+), throwing up blood, peeing blood and chunks, and in a lot of pain. Hope to see you guys around. Thanks, Nic.

Drink plenty of water, (not dark sodas with phosphorus), less salt, more fruits and veggies and less "prepared" foods.   

Only your nephrologist or renal dietitian will be able to tell you if you are to reduce your protein intake, avoid high phosphrous foods, high potassium foods, and how much sodium you should limit yourself to. 

In my situation, I was limited to 1 ounce of cheese or 1/2 cup of milk a day. I chose cheese, so then I learned to eat dry cereal as a "snack" instead of with milk. I tried the things that were allowed, like non-dairy creamer, but I didn't like that, so I learned to eat it "dry".  I could not eat bananas very often. So the morning after my transplant, I had Cherrios, with sliced bananas and milk for breakfast - absolute joy!

I started eating for kidney health when my GFR had been 18 and I saw the nephrologist for the first time. I'd believed my former docs who said there was "nothing I could do" to delay progression of my genetic disease.  I know now, I could have been doing a lot more to keep myself healthy.  Wish I'd seen a nephrologist sooner.  I try to focus on healthy now and not regrets of the past. 

Ask your nephrologist right off the bat when you see him/her and they'll realize you want to be good to yourself.  What Getlife said is good too, avoid all "natural" and over the counter meds and vitamins before you discuss it with your neph.  Give them a list of everything you take - even if you don't think it is significant. 

This is a good show!  I was just inquiring about when it ends and someone in the Medicare office told me I could get Medicare to last longer since I was "disabled".   Confused me!

I was thinking about whether I should stay on, but, the show was right to say it ends after 36 months with a transplant. 

Thanks, Lori, for doing the show. I think Medicare people are confused, too.

Lucy Kim is a Licensed Clinical Social Worker at Cedars-Sinai Medical Center in West Hollywood, CA. She has worked with transplant recipients for several years. Patients always ask her, “After I get my transplant, how long will my Medicare benefits last?” In this interview, Lori and Lucy talk about what people need to know if their benefits end 36 months after their transplant to help them look for other ways to get their life-saving antirejection medication.

 
http://www.rsnhope.org/kidneytalk-podcast/show-index/medicare-benefits-for-transplant-medications-when-do-they-end/

Refurb