Don't want to type your concern or question, talk to a patient survivor on the phone! HOPEline 800-579-1970
October 01, 2014, 05:12:06 AM PDT *
Welcome, Guest. Please login or register.

Login with username, password and session length
News: Save the Date - 2014 Poker Tournament!
RSN's 5th Annual "Beat The Odds" Celebrity Charity Texas Hold-Em Poker Tournament. Saturday, November 8th, 2014 at the Glendale Civic Auditorium.
   Home   Help Search Calendar Login Register RSN Home The HOPEline RSNhope store  
Pages: [1] 2 3 ... 10
 on: Today at 02:59:11 AM 
Started by Tatami - Last post by Tatami
Hi all - I haven't been here in quite a while.  I go into periods of denial, I guess, where I force myself to stop worrying myself senseless about whether or not I might truly actually have CKD, and during that time, I just try to go about my business as best I can.  This all came to an end last month when I got my yearly bloodwork done by my GP/GYN (in Japan, or at least in my city here, ladies are encouraged to think of their "ladies doctor" as a general practitioner, so that's what I did), and noticed that my creatinine had creeped up again...Great.  My eGFR was at 48.7, and I freaked out.  I asked my doctor what I should do next - and he IGNORED me.

After a few weeks mulling over how to deal with him, I up and just switched doctors.

Luckily, my new doc (also primarily a GYN, but who immediately felt a ton more competent in every possible way) took one look at my blood test results and got me another appointment to go to the hospital and get checked out in the nephrology department.  I went, did the blood and urine test once more, had my blood pressure tested and all of that usual stuff, and the nephrologist told me, just as he had back in 2012, the last time I had gotten the same testing done, that while my creatinine was a bit high and my eGFR was lower than normal, I didn't show any other signs of CKD.  No protenuria, no high blood pressure, no diabetes, no nothing.  He said that maybe because I'm a bit overweight, it's affecting those results.  Fair enough! 

He said not to worry about it, but asked me to come back in another month to get the results of another part of the test - Cystatin C, which I'd never heard of before.  Today was the day I was to go back for that result, and I suddenly realized that it gave me my actual GFR.  The Cystatin C is at 1.08, which, according to the paperwork I'm looking at right now, makes my actual GFR 68.1.  Sure beats the eGFR number I'd gotten!  My doc then said that even though it's still below where it should be, to still not worry too much about it, and I am scheduled to come back to the hospital in 6 months to do the testing all over again and see where we are.

I don't have any particular question about all of this, but I do wonder what all you kind and helpful folks might make of this.  I guess I don't understand how it works.  How can I have kidneys that aren't functioning as well as they could be, but I don't have any of the accompanying complications that would get me a solid CKD diagnosis?  Does anyone else have this, or does anyone know why this might be?  Could I have just damaged my kidneys taking some sort of medication years ago?  Might I be genetically predisposed to weak kidneys?...I wish I could understand what might have caused my kidney function to weaken.  If it helps, I'm a 40 year old woman.  I don't have a car, so make exercise out of walking around my city to run my errands 2-3 hours at a time every other day or two days or so (trying to keep my weight down any way I can), so I feel as though I'm fairly active on the whole.  It's apparently doing some good, since my blood pressure was more normal than ever this time around, and I'm grateful for that.  I just wish there were something more I could be doing to help my kidneys to at least stay at the level they're at now.

I would love any input about any of this.  You all have been so helpful when I've come here in a panic.  I'm reading around online to see about the ways I can help protect my kidneys, and trying to make notes on all of it.  I thought it would be a good time to check in with you all.  Thanks in advance for any insight.

 on: Yesterday at 08:22:57 PM 
Started by TRB - Last post by TRB
I didn't do so well with myfitnesspal either - - I need to start again and do better. 

Give it a shot, each time we may get a few more off.

 on: Yesterday at 07:30:23 PM 
Started by TRB - Last post by BJ275
I didn't do so well with myfitnesspal either - - I need to start again and do better. 

 on: Yesterday at 03:46:57 PM 
Started by TRB - Last post by TRB
Best wishes for your labs! 

Thanks, it is getting closer. Still about 10 or 15 pounds to go to be listed.

 on: Yesterday at 03:17:29 PM 
Started by TRB - Last post by BJ275
Best wishes for your labs! 

 on: Yesterday at 01:55:59 PM 
Started by TRB - Last post by TRB
I've tried all the sleep aids over the years. Some help for a short time and then not so much.

Have been feeling a little glittery now and then. Labs Friday.   

 on: Yesterday at 12:53:49 PM 
Started by obsidianom - Last post by obsidianom
I just read an interesting article on insulin resistance and kidney disease. It does appear that insulin resisitance can lead to ESRD . It mentions one of the toxins, p-cresyl that I previosly mentioned as being more toxic then urea.

--"the site of insulin resistance is localized to skeletal muscle, and that insulin resistance partially improves with dialysis.[5] Recent studies have identified specific uremic toxins that may mediate this effect, including gut-derived molecules such as p-cresyl sulfate"

 on: Yesterday at 10:08:48 AM 
Started by refurb - Last post by refurb
Going Viral for a Kidney

“Let’s take this picture and make it go viral,” said Brandy to her friend Kristi. Little did they know just how successful that campaign would be. Kristi Callaway told her long-time friend Brandy Angel that her husband was in need of a kidney and they came up with a plan to start looking beyond their immediate group of friends and family. Raleigh Callaway, the police officer who had kept quiet about his failing kidneys, suddenly found himself in the middle of a social media whirlwind. Listen to how these friends teamed up to make it happen and how they plan to help others through what they’ve learned.

Learn more about their work at


 on: Yesterday at 07:32:16 AM 
Started by Peasha - Last post by PrincessLeila

A person doesn't end up in the ER with kidney failure for no reason.

Spot on BJ, well said. And it was certainly not caused by anxiety!

 on: Yesterday at 07:29:50 AM 
Started by TRB - Last post by PrincessLeila
Tim, have your resorted to taking any sleeping pills for your insomnia? What seems to cause you stay awake?

Great to hear that you're doing your normal regular routine!

Pages: [1] 2 3 ... 10